Saturday, January 12, 2008

"Stupid"

In case any of you think this experience is going to change my father, or make him heed the advice of others any more than he has in the past, think again. Last night he tried to get up out of bed, and fell. Lucky once more, he didn't hurt himself, except perhaps in the pride area. I could see in his face today that he is sad and wants out of there. I think he has these episodes of frustration at night when he's alone. I wish we could station one of us by his bed at all times. As you can probably tell from my description of Uncle Bob's visit yesterday, he's better all around, physically and mentally, when he's got people around and isn't lying helpless in bed. When I asked him why he did it, he wrote "stupid", then "I think they're pissed off." I told him they just don't want him undoing all their hard work -- a fall is *exactly* what they are concerned about most right now, since the respiratory issues have subsided. It's the most likely thing to happen, and the most dangerous.

Still, his humor is there. We could see that the doctors were doing rounds, so he wrote out "Doc, you ok for Flabob tomorrow?" He was asking if he could get a pass to go out for the chapter meeting at Flabob scheduled for tomorrow (I'm going in his place). The doctors and nurses are completely charmed, by his humor and his personality, and by the story of this guy who built an airplane. There are probably a lot of people who come into the ICU with end-of-life events, whereas Dad is strong and personable and headed towards walking out of there back to a full and interesting life (as long as he stops trying to get out of bed on his own).

So the fall is the bad news, but there is good news aplenty. Still no fever. They are going to fit him with a valve that will let him talk. They experimented with the vent to see how he would do using his voice. Here's the three things he said during this quick experiment:

1. Fuck!
2. Good morning.
3. Shit!

Quite the usual ratio of colorful to polite words. He always reaches out his hand to the doctors and nurses to shake their hands -- they like that.

Second good news: they might move him out to the main ward tomorrow. The doctor says that will give him greater mobility, because they can start to disconnect some of the wires and tubes. He wrote the order for the valve that will allow him to speak. Then he can start having visitors. Maybe I could even walk him near an open window.

Stay with me, everybody! We're moving past the milestones one by one. Soon we'll be talking about a rehab facility, then maybe a stay with me.

3 comments:

Unknown said...

Hi Deborah,

Your dad cracks me up! He is so funny. I can understand, again his frustrations of being immobile. It must be so hard for him. He probably doesn't realize how fragile he is right now, especially after laying in bed thinking he can get right up when he wants to. Too funny. Thank God he didn't break anything else or damage what was already done. I can tell that he is going to recover well from this and tell his story to everyone. Maybe we can get a Journalist to come up with his story and tell it on TV or on the news!! He could become famous for a little while. Hmmmmm> Something to think about. Take care of yourself. Laura & Jonny

Dris said...

Glad to hear that he didn't hurt himself in the fall. I'd hate to think of the damage he could have done to that fracture site (aka possibly doing permanent damage to his spinal cord), breaking a hip, or worse. Do you know where he was headed if he had managed to sucessfully get out of bed? Did he feel like he had to pee? Did he want to sit in the chair? Or was he going outside for awhile?

If the Flabob folks meet monthly, he will probably be able to go to the next from wherever his he recouperating. A day pass. However, I'm sure that his idea of a day pass will mean stopping by the house to see the cats, visiting with family and friends, going out for a decent meal, and going to the meeting, etc.

I had to chuckle at Dick's first words. I'm sure everyone wanted him back on the vent while they recomposed themselves. I'm sure that they were wetting themselves with laughter. My husband is bilingual. Latvian and English. Wanna know the words I know in Latvian? Garlic, goosebumps, fart, snot on a rod (!), and little mouse. I have to tell you that we attended a Latvian funeral several years ago, and I hopefully waited to hear any of the phrases I knew so I knew what was going on, but alas, I was dissapointed.

I'm sure that once your Dad is off the vent for any period of time, you will be able to wheel him outside for his fresh air fix. It will help, but will also make him more restless to be out of doors.

When are they going to let him start drinking/eating? That'll be a huge step forward. Have they tried keeping him off the vent at night? If so, do you know what happens? When he isn't attached to the vent, he'll be able to walk farther and increase his strength. It's amazing how fast you can lose muscle tone when you aren't using them.

I have mixed feelings about him moving to the main floor. He'll have more freedom, which has it's pros and cons. He will not get the same attention to his care as he got in the unit. And you will need to be more of an advocate for him, and the regular floors are understaffed and overworked. I won't even tell you horror stories of when I was health care proxy for someone with pancreatic cancer. Just remember that what you are used to in ICU will probably not occur on the regular floor. I know Uncle Dick, and he will capitivate the nurses, so perhaps he will do alright. He will be a favorite in no time, which will help. That doens't speak positively for those folks on the unit who cna't speak for themselves.

I'm sure that the Flabobs/Flabobians/Flabobeners or Flabobenttes will be thrilled to see you tomorrow and will have all sorts of stories to tell you about your Dad. And you will have all sorts of messages to bring back to Uncle Dick.

Tomorrow is another day. Looking forward to the next update.

Cousin Carole

Deborah Testa said...

Hi Carole,

They've been taking him off the vent during the day, then hooking it back up at night. There was some difficulty at first -- the day wouldn't go by without some problems related to breathing, but that has subsided, and the stuff he's coughing up is getting less voluminous. As far as where he was going when he got out of bed, I think it's just an impulse, to get up and get away from the wires and tubes. He didn't mention a destination.

That day pass you outlined sure sounds good to me. I told him that every time I leave the hospital I think of the time I will leave with him with me (and told him not to screw that up by getting out of bed and falling!).

I forgot to mention: I saw him going through his physical therapy drills: touching each of his fingers with the thumb, plus lifing and flexing his legs. It's clear that everything works, and I did all the exercises with him a couple of times.