Monday, January 7, 2008

Monday Mid-Day

I got a call from Dad's case manager at Kaiser at around 10:30 this morning. She doesn't communicate very well, and I couldn't tell whether there was a problem. I had only left the hospital three hours earlier, and was working at my desk at home. She made it sound like there may have been a problem (there wasn't), or that I might need to make an immediate decision about where to move him (I don't). I rushed over there, and he was awake! Well, "awake" might not exactly be it. We definitely communicated. He looked at me, making clear eye contact including moving his eyes. When I took his hand, he squeezed it so hard -- I mean *really* hard -- that I had to pry it off and take off my wedding ring before taking his hand again. He wiggled his toes, the left more than the right. The doctor came in and told him to lift his right hand, which he can barely do. But he did it, and kept trying even though the response was weak. But there's nothing weak about that left hand, and we gripped each other while I recounted the events once more. He gets agitated, and while I was there his systolic blood pressure when up from 127 to 168, starting when they came in to take a blood sugar reading. They gave him insulin as a result. I don't think Dad has a history of diabetes. I hope that's a temporary spike and not a permanent problem.

We were very definitely communicating, and he was understanding me. When the doctors came in I said that he had wiggled his feet and toes, and he did it again in response to what I said. So he definitely understands me. And although the tube in his throat helps him to breathe by providing support, it doesn't initiate the breathing -- he's doing that all on his own.

I stayed longer this time, since he was clearly responding to me. I told him over and over that things would be ok. It was *extremely* difficult to leave.

Uncle Bob called and requested some documents -- the impound facility only wants to release the plane to the owner. Like that's going to happen. I scanned Dad's driver's license and a confirmation of aviation insurance to Bob, and he'll see if that's enough to get them to release it.

Kaiser wants to develop options for Dad's discharge now, so that they have time to investigate possibilities, and so that we don't have to do that thinking at the last minute. If it's feasible, I could have him stay with me, but he may need specialized support and rehab and physical therapy. He was having trouble negotiating the stairs at my house when he was here for Christmas, so if he comes here he will be limited to the upstairs bedroom. The other alternative is a live-in facility, and I asked the case manager to investigate what's available in the surrounding communities of Studio City, North Hollywood, Burbank, Sherman Oaks and Hollywood. There are two rehab facilities just down the street, but I guess I need to limit us to the ones who are under contract to Kaiser.

4 comments:

Dris said...

I got tears in my eyes reading your latest message. He knows you, and is responding to the best of his ability. That is just awesome news Deb. Don't worry about the right side of his body just yet. It's still early in his recovery. If he has some movement, then there is lots to work with. Physical therapy. Occupational therapy, Etc.

I'm not too worried about the blood sugar just yet. I'm assuming that he is getting IV fluids, which are probably Glucose and thus would increase his sugar levels. Several of the anti-inflammatory meds can also increase the blood sugar levels. However, his mother was diabetic, so he could very well have inherited that trait. Only time will tell. I don't know how often your Dad saw the MD's prior to this, so this may have been a problem that has been developing over the past few months/years... and just not diagnosed until now.

I wouldn't be worried about the blood pressure right now. That could be anything, and it may not be sustained. Hell. I think I'd have a high BP if I were in his condition. His anxiety and frustration could be raising it, and that is something that you might want to pay attention to. See what the converstion is when his BP elevates. Perhaps you can get a clue as to what is bothering him...and perhaps just explaining things will help. Even at his highest reading, it's still not in the dangerous level. (what is the bottom number of his BP)

Discharge planners. It's hard to think about Dick leaving the hospital already when he still a way to go, but that's what they do. Ideally, I'm sure he'd love to go home with you. However, that isn't always the best choice. I have no idea what the layout of your place is, or his place for that matter. What else is on the floor where he'd be staying? He's going to need a bathroom (obviously), access to the kitchen is a good thing so he can grab a bite to eat, a TV/computer/etc so he doesn't get bored during the day. Cooking with a weakened right side might present some challenges. If his home has stairs, he'll want to practice using stair before being sent home. Don't let the discharge folks push you too hard, or too fast!!

Time for me to think about dinner.

Hang in there. Our best to you and Ricky, and of course Uncle Dick.

Cousin Carole

Unknown said...

It is so nice to hear the progress for today. I was so happy to hear that he is responding to you and that he understand and hears you as well. I hope he has the patience to take his recovery step by step and day by day. I will continue to keep him and all of your family in my prayers. Looking forward to more news tomorrow. God Bless, Laura (neighbor)

Unknown said...

Hi Dick,

This message comes from Jonny, Laura's 15 year old son and neighbor. Jonny saw the posted picture of the finished plane. Remember, we both saw it from birth. :)
He was so impressed at the beauty and the colors chosen. In his word, he thought it looked "awesome". Jonny and Dick shared several conversations throughout the building process. He hopes for Dick's speedy recovery so they can share more talks.
I told Jonny about the progress today, and he and I both pray for him to keep up the good work!! Blessings, Laura & Jonny! (neighbor)

Anonymous said...

It's great that he got his trach and is off the ventilator. It's wonderful that he is responding to you. Since his left hand is so strong maybe he could try writting. Is he left handed or right? Also now is a good time to bring in a calender to help him orientate to the date and time. bring any photos he treasures to have familar things around him. Another good idea is to have a picture board from speech therapy, so he can point to what he wants. His frustration level will start to come down as he is able to communicate.
Check and see if they have him on steroids, they use them to decrease inflamation and swelling. They increase the blood sugars. Keeping his sugars in the normal range will increase his healing.
Deb Check out the local rehab places near you(that are kaiser afiliated) and get a sense for how they opperate and how the patients respond. They are basically nursing homes that have a rehab section. So they can be pretty shocking to see a first. But for the short term they do the job. My mother was in one for about a month after her stroke. It gave her great motivation to work hard so she could go home. Once home she continued with home rehab for a few months.
Tell Dick Tom and I are rooting for him and praying daily for his full recovery. Tell him that many here are praying for him as we did put him on the prayer chain.
Thank you for your continual updates.
Maryanne